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S.15/E.20
Caregiving for Severe ME/CFS
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Half a Man
​
half a man by 25
barely human by 32
the sight of me may well repel you.
my dignity is shedding like the skin
i’m too weak to wash
my heart is aching like the teeth
i’m too weak to floss.
soup through a straw; i’m too weak to chew
bloating and cramping; i’m too weak to poo
two taps means yes when i’m too weak to speak
leg muscles grow smaller week after week.
cover my ears, cover my eyes
the noise-floor of life is too much to bear
even my thoughts, smallest in size
a whisper inside still raises my hair.
like cold wind blowing on a body with no skin
where else is there to hide when i’m all the way in?
behind my eyes, seeking shelter in a void
beyond where is taught by Jung or by Freud
no god or devil or lessons to be learned
no strength to be gained or prize to be earned.
is this death? i guess we will see
i thought life would be more romantic for me
i still want a wife and a house with a yard
and to teach my son how to play the guitar
to sing love songs to the woman of my dreams
but i’m shackled to a bed, too weak to scream.
too weak to grasp what’s left of my soul
to wrangle the fragments of what was once whole.
silent darkness, my only friend
the living death of a fragile man.